HAE IN-MOTION Awareness Walk
Saturday, September 28, 2019
8:00 am Registration Opens, 9:00 am Awareness Walk Starts
68 DAYS until the HAE IN-MOTION Awareness Walk in Portland, OR!
REGISTRATION IS FREE!
What is HAE?
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.HAE symptoms include edema (swelling) in various parts of the body, including: hands, feet, face and airway (throat).
Who is the HAEA?
The HAEA is a non-profit patient advocacy organization serving Hereditary Angioedema patients. Our Association was founded and staffed by HAE patients and caregivers. We provide the HAE community with a personalized support network and a wide range of services to help them lead a normal life.
What are the HAE IN-MOTION® Events?
The HAE IN-MOTION events serve as the largest HAEA fundraising campaign. All fundraising proceeds from the HAE IN-MOTION events will support three of our main programs:
- The Pam King HAEA Scholarship Program, providing financial support for HAE patients seeking to improve their lives through academic achievement
- The HAEA Compassion Fund, which offers financial assistance to patients in need who must travel to see an HAE medical specialist
- The Research Fund, pioneering innovations in HAE science
2019 will mark our fourth year of the HAE IN-MOTION events, and the events have expanded to include post-race breakfast foods as well as family-friendly activites, allowing more time for meeting new friends and re-connecting with old ones. Each event provides a fantastic opportunity for family, friends, students, co-workers and colleagues to come together to spread awareness about HAE while supporting a worthy cause! We need your support to make these events a success, and to help raise awareness and much needed funds to allow the HAEA to continue with advocacy, education and research efforts. Your support is greatly appreciated!
THANK YOU TO OUR 2019 GOLD LEVEL SPONSORS!