Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face and airway.
As most of you know I was diagnosed with HAE this last year. This has forever changed my life. I myself have random swellings in my hands, stomach, feet and worst of all my throat. Individuals like myself suffer with the condition daily. Many of us are constantly fatigued, in pain and some are wheel chair bound or confined to the bed or couch. As of now there is no cure but we can only hope with research this will change!
Please come our team for the HAE-In-Motion 5K to support a worthy cause! All proceeds go to the US HAEA, a non profit organization that provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized patient support. The US HAEA is dedicated to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.
We hope to see you at the event, but if you cannot participate, please consider a donation toward our team fundraising goal. Every donation, little or big counts!
Thank you for your support!