Dear Friends,

Please join me in raising awareness for HAE and register for the 2019 HAE DAY :-) Virtual walk/run taking place February 28, 2019 (Rare Disease Day) through May 16, 2019 (HAE DAY) to raise awareness and support a worthy cause!  Registration is free, and all participants that raise $50 will be mailed an official 2019 HAE DAY :-) Virtual walk/run Finisher Medal!

All proceeds go to the US HAEA, a non profit organization that provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized patient support.

Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face and airway.  The US HAEA is dedicated to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately, find a cure.

I hope you will join me in this event, but if you cannot participate, please consider a donation toward my fundraising goal.  Every donation, little or big counts!

Thank you for your support!