2019 HAE DAY :-) Virtual walk/run

Team HAEA

The HAEA Staff is coming together to support HAE Day :-) 2019, with Team HAEA for the Virtual walk/run taking place February 28 (Rare Disease Day) through May 16 (HAE Day)! 

Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.  HAE symptoms include edema (swelling) in various parts of the body, including: hands, feet, face and airway (throat).  Patients often suffer excruciating abdominal pain, nausea, and vomiting caused by swelling in the intestinal wall.  Swelling of the airway or throat is particularly dangerous, because it can cause death by asphyxiation. 

Registration is free, and we will be tracking your progress to see how much distance was covered to spread awareness of HAE and raise funds to support the HAEA’s three main programs:

·  HAEA Scholarship Program - provides financial support for HAE patients who are entering or attending college and seeking to improve their lives through academic achievement

·  HAEA Compassion Fund - offers financial assistance for patients in need who must travel to see an HAE medical specialist

·  HAE Research - supports expert researchers in their efforts to solve the remaining scientific mysteries of HAE through the US HAEA Angioedema Center at UCSD

All individuals that raise $50 or more will receive an official 2019 HAE DAY :-) Virtual walk/run Finisher Medal!  We would love to see some photos of participants with their medals on Social Media to help boost interest and fundraising for the event!

Get ready to track your walking/running progress at 5k.haea.org starting on February 28th, and let's do this together to raise awareness for HAE!

 

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