Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people. As many of you know, I have 3 of my very dearest loved ones, who have this awful disease. My son, daughter and granddaughter! We almost lost my son in 2011 due to swelling of his airway, and this affects all of their lives dailey. My precious granddaughter has been affected at a very early age. HAE symptoms include episodes of edema (swelling) in various body parts including the hands, feet, face and airway.
Please join our team for the HAE-In-Motion 5K to support a worthy cause! All proceeds go to the US HAEA, a non profit organization that provides HAE patients and their families with a support network and a wide range of services including physician referrals, disease information, and individualized patient support. The US HAEA is dedicated to advancing and conducting clinical research designed to improve the lives of HAE patients and ultimately find a cure.
We hope to see you at the event, but if you cannot participate, please consider a donation toward our team fundraising goal. Every donation, little or big counts!
Thank you for your support!