2019 HAE DAY :-) Virtual walk/run
February 28 - May 16, 2019
What is HAE?
Hereditary Angioedema (HAE) is a very rare and potentially life-threatening genetic condition that occurs in about 1 in 10,000 to 1 in 50,000 people.HAE symptoms include edema (swelling) in various parts of the body, including: hands, feet, face and airway (throat).
Who is the HAEA?
The HAEA is a non-profit patient advocacy organization serving Hereditary Angioedema patients. Our Association was founded and staffed by HAE patients and caregivers. We provide the HAE community with a personalized support network and a wide range of services to help them lead a normal life.
What is the 2019 HAE DAY :-) Virtual walk/run?
2019 will mark the first year of the HAE DAY :-) Virtual walk/run. This event will take place between Rare Disease Day 2019 (February 28th) and HAE Day 2019 (May 16th), and will allow anyone interested in participating in this event to do so at their own pace, and in their own way. We are asking all registrants to log their walking or running distance done between February 28th and May 16th into the site to show all the distance covered to spread awareness of HAE! All fundraising proceeds from the 2019 HAE DAY :-) Virtual walk/run will support three of our main programs:
- The Pam King HAEA Scholarship Program, providing financial support for HAE patients seeking to improve their lives through academic achievement
- The HAEA Compassion Fund, which offers financial assistance to patients in need who must travel to see an HAE medical specialist
- The Research Fund, pioneering innovations in HAE science
This event provides a fantastic opportunity for family, friends, students, co-workers and colleagues to come together to spread awareness about HAE while supporting a worthy cause! We need your support to make this event a success, and to help raise awareness and much needed funds to allow the HAEA to continue with advocacy, education and research efforts.
Your support is greatly appreciated!